April 7“Nothing is easy.
Though time gets you worrying
my friend, it’s o.k.
Just take your life easy
and stop all that hurrying,
be happy my way.”

  • Jethro Tull

Some days, Jethro Tull has my back. Like today.

It really shouldn’t be too bad a day. Simon has gymnastics, which he *loves* and looks forward to.

But this afternoon, I also got a phone call that Simon has been doing his “twitch” all throughout school.

Let me explain it.

Simon is on medications, and some of them, in the past, have caused twitches or other involuntary (and unvoluntary) movements. Two years ago, we had him go in for testing to see if he was prone to seizures or having seizures that we weren’t able to see or document. They flashed lights, made him blow on a little wind-mill toy to make it spin, and did all sorts of stuff to see if they could trigger something.

Nothing.

We managed to get in and see a neurologist to review the results of the testing, and he was extremely relaxed about the whole thing. He told us that what he was seeing, and what we were telling him, sounded like tics and that they would likely come and go over time. There didn’t seem to be any abnormal brain activity, and it was “normal” for some children with autism to have those types of movements. In fact, after reviewing the meds that Simon was taking, he told us that the meds should have helped *stop* any tics or twitches, as opposed to causing them.

Sound good, right?

But then Simon started a new one. He seemed to only do it every once in a while, and there was some sort of pre-cursor to it.

The twitch was a serious one, at least from an outsider’s view. Simon would tense his body, then twitch, starting at his head, but it looked like it ran through him. After he twitched, he would often say “hi” or “hi Mom” or “hi Dad” or something.

The thing is, if you asked if he was okay, he could answer yes immediately, and if you told him to stop, he would. And he normally only did it when he was mad or upset or if it was time for bed. (I have no idea why going to bed caused it…but, hey, it’s Simon. Whatever works.)

Part of me still thinks it’s just a major stim. Something he’s doing because it feels good.

But then his teacher called and said he had been doing it all day in school. Not just a few times, but over and over again. She had taken him to the nurse who had checked his eyes, checked his grip, all that kind of good stuff, and he was fine from a physical stand point.

But…

But he kept doing it.

He’s on the bus now, coming home, and I’ll be keeping a close eye on him before, during, and after gymnastics, but I can feel the stress invading my body as I get ready for it. Get ready for careful watching. Get ready for worrying if I do notice it. Get ready for calling the doctor, going to the doctor, getting tests done, and, of course, even more worrying about tests and doctors.

Because, well, as Tull has said over and over again – nothing is easy.

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