Life, Autism, Disability, and More

Tag Archives: disabilities

republicanNevada republican representative Cresent Hardy is an asshole.

I know, crazy of me to say that a republican is an asshole, but it’s true.

But he’s further along the asshole republican spectrum.

Because, while speaking at a political expo in Vegas, he made an awesome statement:
“…They will not be a drain on society…hopefully they will never have some disability…”

Apparently, his children “…work hard…raising their own families.”

That is so awesome for you, asshole.

I also hope your children never have a disability because then, according to you, they will be a drain on society. And since you’ve already stated that people who need government assistance are “freeloaders,” I can only imagine what will happen if your children need your help.

Will they also be freeloaders and drains on society? Will you decide to abandon them?

What will happen if you need government assistance?

Oh, wait, you already get it.

If we need to talk about someone that’s a drain on society, let’s talk about a politician who earns $174,000 a year as a base salary (and that was in 2014, the last year I could easily find). That low figure covers the 150-ish days a year when they are actually working. It does not cover their benefits package.

The state of Nevada, by contrast, has a median household income of $52,000.

Can we talk about who’s a drain on society now?






bowlin1Sixth place out of six, that is. Because sixth place is still worth something.

Don’t get me wrong. I grew up in a world without everyone getting a trophy. You had winners. You had losers. I played basketball (very poorly), and if I was lucky, they would let me in for the last minute or two of the game, when my playing couldn’t affect the final score. I was one of the official bench warmers. And I was okay with that because I knew I wasn’t good at it. But I tried. I didn’t expect a reward for trying. I would skip the award dinners because, well, I wasn’t getting an award, and the dinners weren’t really that great.

But that’s not the same for Simon.

Simon is in Special Olympics. This past Saturday was his bowling tournament.

bowling2In Special Oympics, everyone is included. Everyone plays.

Some of the kids there can’t handle crowds. Some can’t handle waiting. Some can’t handle noise. Some can’t handle sitting still. Some can’t walk. Some can’t speak.

And that’s all okay.

Because it’s Special Olympics.

The pledge they recite before the games begin is always the same:
“Let me Win. But if I Cannot Win, Let Me Be Brave in the Attempt.”

They are all brave.

They push past what makes it hard for them. Some of them wear special noise-cancelling headphones. Some of them roll up in their wheelchairs and push the ball down a ramp. Some of them need to have a coach or assistant down in the bowling area with them. But they do it. And they’re proud of doing it. And they have fun doing it. They have fun being involved. They have fun competing. They have fun knowing that they are being like every other kid out there – win or lose, they are playing.

So Simon got sixth place out of six. And he stood there, tall and proud, while they put the ribbon around his neck. And we stood there, tall and proud and taking pictures, knowing that he made it through another tournament, through all the things that normally would bother him, and through two hour of focus.

Support!  By teerapun via freedigitialphotos.netASAN – for those that don’t know – is an awesome and amazing organization. It’s the Autistic Self Advocacy Network, and if you aren’t following it on Facebook or Twitter and not donating to it, you should be. The reason they are awesome and amazing is that they aren’t just people talking about Autism; they are people with Autism, telling everyone else what they want. It’s not like Autism Speaks (who has no Autistic members in their higher-ups).

So today they posted up a link to an older piece; one called “Understandable.” It’s a hotly debated topic, and one that I’ve read many other articles about, but I think that their fictional piece captures it so much better than all the other things I’ve read.

The basic purpose of the piece is this: it is not “understandable” that parents would murder their children because their children have disabilities. You should not sympathize with parents who murder their children because the children have disabilities. It is not okay when parents murder their children because their children have disabilities.

To break it down to its most basic point: don’t kill people. Don’t kill children. Don’t kill adults. Just don’t fucking kill people.

Now, to get into more of the details of it.

One of the arguments that gets made is that the parents are under stress; they are dealing with issues, and they feel overwhelmed. They worry. They don’t get enough services. They don’t get enough help.

Well join the club. I understand what it feels like to be overwhelmed, what it feels like to wish for more services, what it feels like to wish for more help. Having a child at all is difficult; having a child with a severe disability is difficult, too. But murder is not an option. It shouldn’t even be on the table. No one should think, “Hmmm, this is hard, so I’ll just kill someone to make my life easier.”

Another issue that often comes up in the argument (should there even *be* an argument here??) is that parents worry about the future and what will happen to their disabled child. Again, I understand the worry. I don’t know what Simon will be like at 13…at 14…at 18…at 21. Will we be struggling to pay for him to be in an assisted living community? Will he be living with us? Will he need day care for adults? Will he have a job? A girlfriend? A boyfriend? Who will be there to take care of him when we’re not? All valid concerns, right?

A lot of those concerns are also true of the elderly. They need help, they need care, they can cause a lot of worry to their relatives who want them to have the best possible lives. But how many times do we read about a child killing their parents because of “worry” or “stress” and think, “Hey, I understand. We all might snap if we have to take care of our parents.” Sounds pretty unbelievable, right? If you saw it in the news, you’d be outraged, not “understanding.”

So, again, I’ll repeat the basic point: don’t kill people.