I don’t want to, and don’t mean to, take away from the tragedy that happened in Lake Jackson on the 5th. A five year old girl was hit and killed by a truck. It was a freak accident. The girl was walking behind her father. She stopped and got down to look in a storm drain. She was too low to be seen by the driver.
I cannot image the pain that goes with having your child die. Especially in such a sudden way. Especially in a way that can lead to you blaming yourself.
Think about it: you turn your back for half a minute. You miss seeing that your child has gotten down on the ground. You don’t see that your child is in danger. It takes almost no time at all.
You will potentially feel that guilt for the rest of your life, I would imagine. I could only think that it’s nearly impossible to erase the feeling. Even though it isn’t your fault, even though it was just a momentary lapse – one that every parent has every day, multiple times, probably – it is the one lapse that will never go away. Never be forgotten.
This is a fear of so many parents and caregivers of those who love someone with autism.
It’s a real fear, a daily fear, a constant fear. A terrifying aspect of autism.
Children, and adults, can decide to run for no reason or for some unknown reason.
Simon is afraid of birds. Hearing birds, seeing birds, sensing birds…that can set him off. We have a handicapped tag to make sure that, on days that when the birds are converging, we can park close by and don’t have to worry about him making a break for it across the parking lot.
But not everyone can do that.
And not everyone can hold onto the person that wants to run. Or keep an eye on them 24/7. There are lapses. There are moments. And they are the scariest parts of the day.
What’s the cut-off age for Halloween?
When I was growing up, I didn’t worry about it. No one really commented on it (to me anyway), and as I got older, my costume got more complex. When I was 17 and dating, my boyfriend – now husband – actually made me up as a car accident/fire victim, going so far as to cover an eye with a patch and making me look all bloody and raw and burned. It was awesome.
But nowadays, I hear grumbling. I hear people complaining about kids who are “too old” or “too big” to go trick or treating. There’s the old joke about “if you can shave, you’re too old to go trick or treating.” The thing is, some boys start shaving when they’re 12 or 13. Is that too old to trick or treat?
The real worry that I’m bringing up here isn’t actually about general trick or treating. It’s about Simon.
He’s 12 this year. He’s not exactly small for his age, either. He’s in the 6th grade (should be in the 7th, but he was held back a year in kindergarten), and he’s definitely going to need to shave within the next year or so. Puberty is setting in.
He loves Halloween, though. Super duper loves it. He just brought it up to me again, and I had to tell him (for the eight-thousandth time this week) that it is on Friday, and that we can go trick or treating after school. The actual plan is to go trick or treating at the mall after school, and then hit the neighborhood around dinner time.
Will he be able to go?
Will people make snarky comments? Refuse him candy and other fun Halloween goodies?
I don’t know how he’ll feel about it next year, but what if he still wants to go? Will we have problems? Will we not?
I hate to quote the Doors, but the future is uncertain…and is the end of Halloween near?
Once upon a time (about a week ago now), a “pissed off mother” wrote a letter that went Internet-crazy.
Obviously, this letter was just a wee bit upsetting to all of those who have children with autism or other developmental disabilities. It took me a while to form a response, but now that I’ve calmed down, I wanted to respond. It *needs* a response.
First, I can’t blame this mother for sending it anonymously. If I had written something with punctuation that was that bad, I wouldn’t want anyone to know I had written it either. (Joking. Humor helps, right?)
But to get to the serious part, I feel sorry for the mother who wrote this letter. Genuinely sorry. Sorry for her and the life she leads. The life she’s going to lead.
She needs to think about the lesson she’s teaching her children. She needs to remember that her children will be the ones picking her nursing home. And that’s not a joke. I’m not being facetious. The letter she wrote shows a distinct lack of caring for those who aren’t “normal” or behave oddly. According to one Alzheimer’s website, the risk of someone developing a form of dementia is one in 14. If she is that one in 14, her children will fear her and revile her, just the way she has taught them to. She shouldn’t be surprised if she finds herself in an inexpensive nursing home with no visitors and no one coming to her grave after she dies alone.
We reap what we sow. She has made it clear that those who are imperfect are not worthy of love or even simple human dignity. She will have that experience herself one day, and perhaps by then it will be far too late for her to change her mind or teach her children differently.
That’s why I feel sorry for her and the life she leads. I also feel sorry for her children. Perhaps none of them will ever learn to appreciate the simple things in life or even life itself. She won’t read this. And she wouldn’t care or understand even if she did. And for that, there is no cure. She will suffer forever.
My son may scare her, but he has empathy. He would feel bad about scaring her. She, on the other hand, scares me. She doesn’t feel bad about scaring people. And she doesn’t know why that’s wrong.
Autism can be coped with. What’s wrong with her, however, can’t be. She may be able to pretend she’s normal sometimes, but her letter makes it clear that she does not possess human emotions. And for that, I feel sorry for her. I have to hope that other parents of autistic children can find it in their hearts to feel sorry for her, too. Because while her letter might shock us and hurt us, we have the strength to move past it. And she never will.